Familjeläger autism 2019

A Systematic Review of Family Functioning in Families of Children on the Autism Spectrum

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    Research Overview and Aims

    Family holidays are often viewed as a highlight of the year: precious times to make memories, have fun together and bond with each other. They can, however, be particularly stressful experiences for children with autism, as well as for family members accompanying them. Most previous research on family holiday experiences has, however, assumed that the family members are ‘neurotypical’. Through our research we want to change that by exploring the holidaymaking challenges faced by children with autism and their families.

    Our research seeks to:

    • Better understand the needs, complexities and challenges of families with children with autism, prior to, during, and after returning from holidays
    • Understand how family memories can foster socialisation and bonding within the family 
    • Make recommendations for the tourism industry (airlines, hotels, airports, attractions, destinations and local communities) to better embrace neurodiversity to improve the holiday experiences of families with children with autism.

    Research outputs:

    • Jepson, A., Stadler, R., & Garrod, B. ().

      Families of young children with autism spectrum disorder in Sweden: The role of culture and intergenerational support

      Autismspektrumtillstånd (AST)

      Publicerad

      Rano Zakirova Engstrand har i sin avhandlingen identifierat och beskrivit vilka miljöfaktorer som kan påverka planering och genomförande av interventioner och insatser för unga barn med autismspektrumtillstånd (AST) och deras familjer i Sverige.

      Författare

      Rano Zakirova Engstrand

      Handledare

      Professor Lise Roll-Pettersson, Stockholms universitet Professor Mara Westling Allodi, Stockholms universitet Associate Professor Tatja Hirvikoski, Karolinska Institutet,

      Opponent

      Professor Richard Hastings, University of Warwick

      Disputerat vid

      Stockholms universitet

      Disputationsdag

      Titel (eng)

      Families of young children with autism spectrum disorder in Sweden: The role of culture and intergenerational support

      Institution

      Specialpedagogiska institutionen

      Families of young children with autism spectrum disorder in Sweden: The role of culture and intergenerational support

      Children with autism spectrum disorder (ASD) have shown high variability in learning outcomes in response to evidenc

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